Collaborative Research - Quality Outcomes
Collaborative Research - Quality Outcomes

On June 23rdMAPS will be presenting a poster on the case of parents of adults with IDD in Ontario at the SCRA Biennial Conference in Ottawa. Visit the conference website for details:

Dr. Hélène Ouellette-Kuntz and Dr. Lynn Martin will work with OPADD, Reena and Mary Centre on a MCSS Modernization Grant. This project will put into practice their research on aging and frailty with IDD through a pilot of the frailty index (

We are pleased to announce that Dr. Hélène Ouellette-Kuntz and Dr. Lynn Martin have officially joined Health Standards Organization (HSO) as members of the Developmental Disabilities Technical Committee.

They will help drive the standards development process and ensure that all points of view relating to a standard revision are represented. This HSO Technical Committees includes an individual with a disability, families, service providers, and researchers. For more information:

Helene Ouellette-Kuntz will be holding a workshop on supporting frail adults with IDD in Belfast, Ireland this June. Conference details can be found here:

Parents caring for an adult child with an IDD as well as another family member (compound caregiving) experienced greater perceptions of burden and family distress. As this negatively influences family functioning, compound caregiving must be included as part of caregiving assessments. See the full study here:

Interviews with key informants from two research teams who have developed frailty measures were conducted to learn about implementation. One measure is used in practice, although neither measure was applied to support policy-making. See the full MAPS study here:

A recent study led by Hélène Ouellette-Kuntz presents two epidemiological approaches to estimate changes in the size of the older adult population with IDD in Ontario. Both methods project an increase. One method suggests a moderate increase (20.5%) while the other method suggests a small increase (4.1% to 8.4%). Full study available here:

Hélène Ouellette-Kuntz to comment on Jonathan Weiss’ study entitled “Prospective Examination of Special Olympics Sport Retention in Ontario” today at Sport Canada Research Initiative Conference in Gatineau. Read more about the study at

Hélène Ouellette-Kuntz was among 8 outstanding researchers from 5 countries named fellow of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) at the Association’s 15th World Congress held in Melbourne, Australia this past summer. Fellowship in IASSIDD is granted to those recognized by peers in the Association for outstanding contributions in the field of IDD.  Since 1996, 116 researchers from 21 countries have been named fellows. Only 8 Canadians hold the title.

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