Collaborative Research - Quality Outcomes
Collaborative Research - Quality Outcomes

Congratulations to Clarabelle Lee, BSc Life Sciences student at Queen’s University and MAPS trainee, who completed her undergraduate thesis advancing our work on frailty and IDD. She presented her research at the 2018 OADD RSIG Day held in Kingston on April 7. You can view her poster at

Congratulations to MAPS/Queen’s-based trainee Stephen Lam who was awarded an OADD – NADD Ontario Scholarship. Stephen’s MSc thesis research examining quality of primary care provision to older adults with IDD will include a focus on co-occurring mental health needs in this population. The award was presented at the OADD conference held in Kingston. 

Congratulations to Robyn Saaltink who successfully defended her PhD thesis in Sociology at Queen’s University titled “Passports to Adulthood, Strong Families and Good Mothering: A Critical Examination of Developmental Disability Discourse in Ontario Between 2008-2014”. Robyn’s research relied on interviews with parents who participated in MAPS research as well as review of policy documents and Select Committee transcripts. A summary of the research will be available shortly.

Virginie Cobigo speaks with Gérald Filion of ICI RDI about how to improve employment opportunities for persons with intellectual and developmental disabilities. (in french:  “Comment améliorer et accroître l’activité sur le marché du travail des personnes ayant certaines déficiences? Entrevue avec Virginie Cobigo”)

Does where you live matter when it comes to the use of home care services among adults with IDD? MAPS study found that adults living in group home settings were more likely than those living in the community to receive support from home health aides and homemaking services with differences more pronounced in some regions than others. The study also showed that older adults living in the community were more likely to receive meal services. The answer to our question is not straightforward –where you live matters for some services, but not for others. ( 

To identify factors associated with the rate of deficit accumulation in adults with IDD, a longitudinal analysis of administratively-held clinical data collected at routine home care assessments was conducted between 2003 and 2015. It was found that increasing age, down syndrome, and living in a group home were significant predictors of deficit accumulation: 

New study examines the patterns of admission of long-term care facilities among adults with IDD across key factors. Results showed that a greater proportion of adults with IDD were admitted to long-term care over a four year period compared to the general population. See the full study for more details here:

Being once frail does not mean being always frail when it comes to individuals with IDD. A secondary analysis of 2,893 individuals with IDD receiving community-based home care services in Ontario was conducted. It was found that although baseline frailty status was a significant predictor or worsening/death, stability and improvement can occur. See the full study for more details here. ()

After 16 months of consultation with patients and families, experts and policy makers, Health Standards Organization (HSO) releases its revised IDD standard. MAPS researchers Hélène Ouellette-Kuntz and Lynn Martin contributed to this work. Read more here:

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