Collaborative Research - Quality Outcomes
Collaborative Research - Quality Outcomes

Webinar – Intersectoral collaboration

MAPS researchers will be presenting a webinar on November 19th 2019 about intersectoral collaboration and its role in supporting adults with IDD who are frail! The webinar will provide information on frailty among adults with IDD, principles and recommendations to guide action on frailty, and key elements of effective intersectoral collaboration. Attendees will also have the opportunity to provide valuable feedback during this interactive webinar! If you’re interested, register for the webinar at this link: https://zoom.us/webinar/register/WN_05fUBQxASU6eFanDx_WMfg

IASSIDD 2019 World Congress Posters

MAPS members and trainees presented for delegates from across the world at the IASSIDD 2019 World Congress in Glasgow, UK in August 2019. Hélène Ouellette-Kuntz presented surprising results of a project examining readmission rates of older adults with IDD and its relationship with primary care follow-up after a hospitalization. Tori Barabash presented the examination of care plans for older adults with IDD within community-based organizations in Ontario in the context of the international consensus statement on frailty in IDD. See their posters below.

New study examines cancer among adults with IDD

Hélène Ouellette-Kuntz is collaborating with researchers from Manitoba and Ontario to study cancer burden and outcomes for Canadians living with IDD. The 4-year project led by Dr. Alyson Mahar at the University of Manitoba and funded by CIHR will rely on health administrative data held in the two provinces.  The goal is to determine whether or not Canadians living with IDD are more likely than Canadians who do not have IDD to be diagnosed with cancer; to be diagnosed with incurable cancer; to not receive the right cancer treatment; and to die of their cancer. Read more about the funding at https://bit.ly/2L34fe1.

Self-determination in young adults with IDD

Self-determination for people revolves around the idea of maintaining or improving quality of life through autonomy. Previous literature has identified lower levels of self-determination in individuals with IDD and methods to develop this determination. However, less research looks at how the family structure supports and enables self-determination. One MAPS study looking at how two families promoted self-determination for young adults with IDD found a balance between short- and long-term goals, focusing on a stepwise progression for independence and choice. Read more about these two families and how they built self-determination for the young adults here: https://bit.ly/2vkkREd

Segmentation as a Planning Tool

Segmentation has been traditionally used as a marketing tool to understand the wants and needs of specific consumer groups and allow service providers to create targeted implementation strategies. While segmentation has been used in other health areas to help target interventions, in this paper, Klag and Ouellette-Kuntz adapt the approach to create an understanding of the support needs of two Canadian subgroups: autism spectrum disorder and intellectual disability. Read how here: https://bit.ly/2Qd8030

Impact of Interventions on Primary Care

Efforts in Ontario since 2006 to improve the provision of primary care to adults with IDD were the focus of a recent study led by Hélène Ouellette-Kuntz. The authors compared preventive care provided through primary care to adults with IDD aged 40-64 from 2003 and 2016 to determine any impact the interventions had. While a small increase in provision for preventive care was seen for men, no change was seen for women, suggesting a small population-level impact. Read the full methodology and the authors’ recommendations for future research here: https://bit.ly/2pK6XZz.

Global Prevalence of Intellectual Disabilities

After a 2009 study reported that about 1% of the global population was affected by an intellectual disability, a systematic review conducted by MAPS sought to update this statistic with recent studies. While researchers found that there was a global interest in understanding the prevalence of intellectual disabilities and a potential lower occurrence than originally reported in 2009, differences in measurements, definitions, and case reporting between the studies prevented strong comparisons to be made. Read more about the details of the study, plus the findings on the incidence of intellectual disabilities, here: https://bit.ly/2RgmmNG

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