MAPS project shows that adding a measure of frailty specific to IDD improves prediction of admission to long term care or death. Read the article recently published in the Canadian Geriatrics Journal. Read the abstract here: https://bit.ly/2zTNbA2
Segmentation has been traditionally used as a marketing tool to understand the wants and needs of specific consumer groups and allow service providers to create targeted implementation strategies. While segmentation has been used in other health areas to help target interventions, in this paper, Klag and Ouellette-Kuntz adapt the approach to create an understanding of the support needs of two Canadian subgroups: autism spectrum disorder and intellectual disability. Read how here: https://bit.ly/2Qd8030
Efforts in Ontario since 2006 to improve the provision of primary care to adults with IDD were the focus of a recent study led by Hélène Ouellette-Kuntz. The authors compared preventive care provided through primary care to adults with IDD aged 40-64 from 2003 and 2016 to determine any impact the interventions had. While a small increase in provision for preventive care was seen for men, no change was seen for women, suggesting a small population-level impact. Read the full methodology and the authors’ recommendations for future research here: https://bit.ly/2pK6XZz.
After a 2009 study reported that about 1% of the global population was affected by an intellectual disability, a systematic review conducted by MAPS sought to update this statistic with recent studies. While researchers found that there was a global interest in understanding the prevalence of intellectual disabilities and a potential lower occurrence than originally reported in 2009, differences in measurements, definitions, and case reporting between the studies prevented strong comparisons to be made. Read more about the details of the study, plus the findings on the incidence of intellectual disabilities, here: https://bit.ly/2RgmmNG
After 16 months of consultation with patients and families, experts and policy makers, Health Standards Organization (HSO) releases its revised IDD standard. MAPS researchers Hélène Ouellette-Kuntz and Lynn Martin contributed to this work. Read more here: http://bit.ly/2Ape2W0
Hélène Ouellette-Kuntz featured in Health Standards Organization (HSO)’s Newsletter for her role as co-chair of the Intellectual and Developmental Disabilities Services Technical Committee: http://bit.ly/2zB6j7a
On September 22, 2017, Hélène Ouellette-Kuntz and Lynn Martin will be holding a speaker series in Toronto, speaking about their research on the changes experienced by home care users with IDD. For more details, see http://bit.ly/2vxKYds.
Dr. Hélène Ouellette-Kuntz and Dr. Lynn Martin will work with OPADD, Reena and Mary Centre on a MCSS Modernization Grant. This project will put into practice their research on aging and frailty with IDD through a pilot of the frailty index. Read more here: http://bit.ly/2w9EmgU
We are pleased to announce that Dr. Hélène Ouellette-Kuntz and Dr. Lynn Martin have officially joined Health Standards Organization (HSO) as members of the Developmental Disabilities Technical Committee.
They will help drive the standards development process and ensure that all points of view relating to a standard revision are represented. This HSO Technical Committees includes an individual with a disability, families, service providers, and researchers. For more information: www.hso.world
Helene Ouellette-Kuntz will be holding a workshop on supporting frail adults with IDD in Belfast, Ireland this June. Conference details can be found here: http://bit.ly/2k3xDUE.