Congratulations to Dr. Virginie Cobigo, who won the Inclusive Research, Exemplary Research: Inspiring Stories Competition organized by the Office of the Vice-President at the University of Ottawa.
Read more here: https://bit.ly/inclusive_research
Vidéo : « Des mots pour le dire » – définir la déficience intellectuelle
This video (in French) from Open Collaboration for Cognitive Accessibility video explores the definition of intellectual disability. The video includes open-ended questions and answers provided by five individuals with intellectual disability. Questions include how the individuals defined intellectual disability, what words others use to speak about intellectual disability they do not like, and how to change the public’s opinion of intellectual disability.
Cette vidéo de Open Collaboration pour l’accessibilité cognitive explore la définition de la déficience intellectuelle. La vidéo inclut les questions et réponses ouvertes de cinq personnes qui ont une déficience intellectuelle. Les questions incluent comment ces individus définissent la déficience intellectuelle, les mots utilisés pour parler de la déficience intellectuelle qu’ils n’aiment pas, et comment changer l’opinion publique en ce qui concerne les personnes avec une déficience intellectuelle.
Vidéo : L’amitié : la perspective des personnes qui ont une déficience intellectuelle
This video (in French) from Open Collaboration for Cognitive Accessibility explores the concept of friendship among persons with intellectual disability. The video includes open-ended questions and answers provided by five individuals with intellectual disability. Questions include how do you know if someone is your friend, what do you do with your friends, would you like to see your friends more often and why don’t you see your friends more frequently.
Cette vidéo de Open Collaboration pour l’accessibilité cognitive explore la perspective de personnes qui ont une déficience intellectuelle concernant l’amitié. La vidéo inclut les questions et réponses ouvertes de cinq personnes qui ont une déficience intellectuelle. Les questions incluent comment savez-vous si quelqu’un est votre ami, que faites-vous avec vos amis, est-ce que vous voulez voir vos amis plus souvent et pourquoi ne pouvez-vous pas voir vos amis plus souvent.
Vidéo : Des technologies au service des personnes qui ont une déficience intellectuelle
This video (in French) from Open Collaboration for Cognitive Accessibility explores information and communication technology use among persons with intellectual disability. The video includes open-ended questions and answers provided by five individuals with intellectual disability. Questions include what do you think of these technologies, what technologies do you use, why do you use these technologies, what supports do you receive to use these technologies, and what obstacles are there when accessing or using these technologies.
Cette vidéo de Open Collaboration pour l’accessibilité cognitive explore l’utilisation des technologies de l’information et de la communication par les personnes qui ont une déficience intellectuelle. La vidéo inclut les questions et réponses ouvertes de cinq personnes qui ont une déficience intellectuelle. Les questions incluent que pensez-vous des technologies, quelles technologies utilisez-vous, pourquoi utilisez-vous ces technologies, quel soutient recevez-vous pour utiliser les technologies, et quels sont les obstacles à l’accès et à l’utilisation des technologies.
Save the date! The Annual IASSIDD Health Special Interest Research Group Conference is coming back to Canada ????
On June 16-17, 2020, join us for a rare opportunity to hear from international experts in intellectual and developmental disabilities.
Whether you’re a health care professional, developmental service provider, academic faculty, researcher or student in health care discipline, or a caregiver, this event is for you. We hope to see you all there!
For more information, visit www.iassiddhealthsirg2020.com.
MAPS researchers will be presenting a webinar on November 19th 2019 about intersectoral collaboration and its role in supporting adults with IDD who are frail! The webinar will provide information on frailty among adults with IDD, principles and recommendations to guide action on frailty, and key elements of effective intersectoral collaboration. Attendees will also have the opportunity to provide valuable feedback during this interactive webinar! If you’re interested, register for the webinar at this link: https://zoom.us/webinar/register/WN_05fUBQxASU6eFanDx_WMfg
MAPS members and trainees presented for delegates from across the world at the IASSIDD 2019 World Congress in Glasgow, UK in August 2019. Hélène Ouellette-Kuntz presented surprising results of a project examining readmission rates of older adults with IDD and its relationship with primary care follow-up after a hospitalization. Tori Barabash presented the examination of care plans for older adults with IDD within community-based organizations in Ontario in the context of the international consensus statement on frailty in IDD. See their posters below.
Congratulations to Virginie Cobigo (Principal investigator) and Rosemary Lysaght (Co-researcher) on receiving the AGE-WELL Catalyst grant and New Frontiers grant. Through the AGE-WELL grant, they will be developing a social enterprise that will employ and train persons with cognitive disabilities to provide a suite of services, in French and English, to technology developers (academics and private industry, including start-ups), accessibility professionals (i.e., offering accessibility consulting and assessment), caregivers, as well as policymakers. Through the New Frontiers grant, they will conduct a small-scale implementation of an inclusive approach to R&D with their first confirmed partner, the IT Accessibility office at Employment and Social Development Canada (Government of Canada).
Hélène Ouellette-Kuntz is collaborating with researchers from Manitoba and Ontario to study cancer burden and outcomes for Canadians living with IDD. The 4-year project led by Dr. Alyson Mahar at the University of Manitoba and funded by CIHR will rely on health administrative data held in the two provinces. The goal is to determine whether or not Canadians living with IDD are more likely than Canadians who do not have IDD to be diagnosed with cancer; to be diagnosed with incurable cancer; to not receive the right cancer treatment; and to die of their cancer. Read more about the funding at https://bit.ly/2L34fe1.
In 2011, Canadian guidelines on the care of adults with IDD were published with the aim of increasing preventive care. Though these recommend adults with IDD receive an annual health examination, recent MAPS study showed no increase in uptake of such examinations since 2011. Read the possible reasons why, in addition to other results, here: https://bit.ly/2J6mfDl
