Collaborative Research - Quality Outcomes
Collaborative Research - Quality Outcomes

Impact of Interventions on Primary Care

Efforts in Ontario since 2006 to improve the provision of primary care to adults with IDD were the focus of a recent study led by Hélène Ouellette-Kuntz. The authors compared preventive care provided through primary care to adults with IDD aged 40-64 from 2003 and 2016 to determine any impact the interventions had. While a small increase in provision for preventive care was seen for men, no change was seen for women, suggesting a small population-level impact. Read the full methodology and the authors’ recommendations for future research here: https://bit.ly/2pK6XZz.

Global Prevalence of Intellectual Disabilities

After a 2009 study reported that about 1% of the global population was affected by an intellectual disability, a systematic review conducted by MAPS sought to update this statistic with recent studies. While researchers found that there was a global interest in understanding the prevalence of intellectual disabilities and a potential lower occurrence than originally reported in 2009, differences in measurements, definitions, and case reporting between the studies prevented strong comparisons to be made. Read more about the details of the study, plus the findings on the incidence of intellectual disabilities, here: https://bit.ly/2RgmmNG

Mortality Patterns in Adults with IDD Across Ontario

A recent study shed light on mortality patterns in Ontario for adults with IDD between 2011 and 2014. Mortality rates were found to decrease over time, but were still in excess when compared to the general Canadian population. Some findings echoed those of other studies internationally including the inappropriate coding of IDD as an underlying cause of death. There is a need to improve cause of death coding practices on death certificates for this population in Ontario and elsewhere. For more information on the most common causes of death and patterns relating to sex and age, read the full article here: https://bit.ly/2ojMc63.

Consensus Statement on Frailty in Adults with IDD

As an emerging field of research, no consensus statement on how to support frailty in individuals with IDD has existed until now. Through international collaboration, MAPS worked with a panel of experts to create a statement that promotes awareness and guides support planning for frail and pre-frail adults with IDD. Some ideas were immediately agreed upon by stakeholders, including using a person-centred approach to planning and considering frailty earlier in adults with IDD. Ongoing international debate initially caused contention to arise around having ageing in place and safety as priorities of the statement. To read the full consensus statement and how it was developed, go to https://bit.ly/2IT8ZgW.

Tori Barabash and Amy Choi – New Members

MAPS is excited to welcome two new members to our growing team! Tori Barabash, who will be entering the MSc Epidemiology program at Queen’s University in September, is taking over the social media portfolio and other tasks from Mara Habash. We wish Mara well as she starts her career as an epidemiologist with Cancer Care Ontario. Amy Choi, an undergraduate student in Life Sciences at Queen’s, will be working on an aging-related project for her 4th year honours thesis.

Stephen Lam – OADD-NADD Scholarship

Congratulations to MAPS/Queen’s-based trainee Stephen Lam who was awarded an OADD – NADD Ontario Scholarship. Stephen’s MSc thesis research examining quality of primary care provision to older adults with IDD will include a focus on co-occurring mental health needs in this population. The award was presented at the OADD conference held in Kingston. 

Robyn Saaltink – PhD Defence

Congratulations to Robyn Saaltink who successfully defended her PhD thesis in Sociology at Queen’s University titled “Passports to Adulthood, Strong Families and Good Mothering: A Critical Examination of Developmental Disability Discourse in Ontario Between 2008-2014”. Robyn’s research relied on interviews with parents who participated in MAPS research as well as review of policy documents and Select Committee transcripts. A summary of the research will be available shortly.

Services for Adults With IDD and Geography

Does where you live matter when it comes to the use of home care services among adults with IDD? MAPS study found that adults living in group home settings were more likely than those living in the community to receive support from home health aides and homemaking services with differences more pronounced in some regions than others. The study also showed that older adults living in the community were more likely to receive meal services. The answer to our question is not straightforward –where you live matters for some services, but not for others. For further reading, see: https://bit.ly/2tCKZJc 

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