Collaborative Research - Quality Outcomes
Collaborative Research - Quality Outcomes

Mortality Patterns in Adults with IDD Across Ontario

A recent study shed light on mortality patterns in Ontario for adults with IDD between 2011 and 2014. Mortality rates were found to decrease over time, but were still in excess when compared to the general Canadian population. Some findings echoed those of other studies internationally including the inappropriate coding of IDD as an underlying cause of death. There is a need to improve cause of death coding practices on death certificates for this population in Ontario and elsewhere. For more information on the most common causes of death and patterns relating to sex and age, read the full article here:

Consensus Statement on Frailty in Adults with IDD

As an emerging field of research, no consensus statement on how to support frailty in individuals with IDD has existed until now. Through international collaboration, MAPS worked with a panel of experts to create a statement that promotes awareness and guides support planning for frail and pre-frail adults with IDD. Some ideas were immediately agreed upon by stakeholders, including using a person-centred approach to planning and considering frailty earlier in adults with IDD. Ongoing international debate initially caused contention to arise around having ageing in place and safety as priorities of the statement. To read the full consensus statement and how it was developed, go to

Tori Barabash and Amy Choi – New Members

MAPS is excited to welcome two new members to our growing team! Tori Barabash, who will be entering the MSc Epidemiology program at Queen’s University in September, is taking over the social media portfolio and other tasks from Mara Habash. We wish Mara well as she starts her career as an epidemiologist with Cancer Care Ontario. Amy Choi, an undergraduate student in Life Sciences at Queen’s, will be working on an aging-related project for her 4th year honours thesis.

Stephen Lam – OADD-NADD Scholarship

Congratulations to MAPS/Queen’s-based trainee Stephen Lam who was awarded an OADD – NADD Ontario Scholarship. Stephen’s MSc thesis research examining quality of primary care provision to older adults with IDD will include a focus on co-occurring mental health needs in this population. The award was presented at the OADD conference held in Kingston. 

Robyn Saaltink – PhD Defence

Congratulations to Robyn Saaltink who successfully defended her PhD thesis in Sociology at Queen’s University titled “Passports to Adulthood, Strong Families and Good Mothering: A Critical Examination of Developmental Disability Discourse in Ontario Between 2008-2014”. Robyn’s research relied on interviews with parents who participated in MAPS research as well as review of policy documents and Select Committee transcripts. A summary of the research will be available shortly.

Services for Adults With IDD and Geography

Does where you live matter when it comes to the use of home care services among adults with IDD? MAPS study found that adults living in group home settings were more likely than those living in the community to receive support from home health aides and homemaking services with differences more pronounced in some regions than others. The study also showed that older adults living in the community were more likely to receive meal services. The answer to our question is not straightforward –where you live matters for some services, but not for others. For further reading, see: 

Deficit Accumulation and IDD

To identify factors associated with the rate of deficit accumulation in adults with IDD, a longitudinal analysis of administratively-held clinical data collected at routine home care assessments was conducted between 2003 and 2015. It was found that increasing age, down syndrome, and living in a group home were significant predictors of deficit accumulation: 

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