Collaborative Research - Quality Outcomes
Collaborative Research - Quality Outcomes

Vidéo : « Des mots pour le dire » – définir la déficience intellectuelle (Video: Defining intellectual disability)

Vidéo : « Des mots pour le dire » – définir la déficience intellectuelle 

This video (in French) from Open Collaboration for Cognitive Accessibility video explores the definition of intellectual disability. The video includes open-ended questions and answers provided by five individuals with intellectual disability. Questions include how the individuals defined intellectual disability, what words others use to speak about intellectual disability they do not like, and how to change the public’s opinion of intellectual disability.  

Cette vidéo de Open Collaboration pour l’accessibilité cognitive explore la définition de la déficience intellectuelle. La vidéo inclut les questions et réponses ouvertes de cinq personnes qui ont une déficience intellectuelle.  Les questions incluent comment ces individus définissent la déficience intellectuelle, les mots utilisés pour parler de la déficience intellectuelle qu’ils n’aiment pas, et comment changer l’opinion publique en ce qui concerne les personnes avec une déficience intellectuelle. 

Vidéo : L’amitié : la perspective des personnes qui ont une déficience intellectuelle (Video: Friendship among persons with intellectual disability)

Vidéo : L’amitié : la perspective des personnes qui ont une déficience intellectuelle 

This video (in French) from Open Collaboration for Cognitive Accessibility explores the concept of friendship among persons with intellectual disability. The video includes open-ended questions and answers provided by five individuals with intellectual disability. Questions include how do you know if someone is your friend, what do you do with your friends, would you like to see your friends more often and why don’t you see your friends more frequently. 

Cette vidéo de Open Collaboration pour l’accessibilité cognitive explore la perspective de personnes qui ont une déficience intellectuelle concernant l’amitié. La vidéo inclut les questions et réponses ouvertes de cinq personnes qui ont une déficience intellectuelle. Les questions incluent comment savez-vous si quelqu’un est votre ami, que faites-vous avec vos amis, est-ce que vous voulez voir vos amis plus souvent et pourquoi ne pouvez-vous pas voir vos amis plus souvent.   

Vidéo : Des technologies au service des personnes qui ont une déficience intellectuelle (Video: Information and communication technology use among persons with intellectual disability)

Vidéo : Des technologies au service des personnes qui ont une déficience intellectuelle 

This video (in French) from Open Collaboration for Cognitive Accessibility explores information and communication technology use among persons with intellectual disability. The video includes open-ended questions and answers provided by five individuals with intellectual disability. Questions include what do you think of these technologies, what technologies do you use, why do you use these technologies, what supports do you receive to use these technologies, and what obstacles are there when accessing or using these technologies. 

Cette vidéo de Open Collaboration pour l’accessibilité cognitive explore l’utilisation des technologies de l’information et de la communication par les personnes qui ont une déficience intellectuelle. La vidéo inclut les questions et réponses ouvertes de cinq personnes qui ont une déficience intellectuelle. Les questions incluent que pensez-vous des technologies, quelles technologies utilisez-vous, pourquoi utilisez-vous ces technologies, quel soutient recevez-vous pour utiliser les technologies, et quels sont les obstacles à l’accès et à l’utilisation des technologies. 

Kelly Biggs- IASSIDD Conference

Kelly Biggs will be presenting her research on colorectal cancer stage at diagnosis in adults with intellectual and developmental disability at the upcoming 2021 IASSIDD conference.

Rebecca Hansford- CSEB 2021 Virtual Conference

Rebecca Hansford will be presenting at the upcoming CSEB 2021 Virtual Conference. Her research explores the influence of congregate setting on positive COVID-19 tests among persons with intellectual and developmental disability in Ontario.

Emma Hildebrandt- New Trainee

Emma Hildebrandt, an undergraduate student in the Life Sciences Specialization program at Queen’s, has joined our team for the summer and will be working on a cancer-related project for her 4th year honours thesis starting in the fall.

Rebecca Hansford- OADD RSIG

Rebecca Hansford will be presenting at the upcoming 2021 OADD RSIG Day. Her research examined COVID-19 tests results among a high-risk sample of adults with intellectual and developmental disability in Ontario.

From premise to practice: Applicability of a consensus statement for supporting adults with IDD who are frail

The study of frailty in adults with intellectual and developmental disabilities (IDD) is an emerging area of research. A new study developed a consensus statement on how to support adults with IDD as they become frail. Twenty-three care plans for adults with IDD who were identified as frail were considered. Goals, actions, and outcomes were coded based on the consensus statement’s principles and recommendations. While care planning for frail individuals, staff appeared to focus on the consensus statement recommendation that improvement and maintenance of the individual’s status are viable goals. Staff also appeared to focus on the consensus statement recommendation that intersectoral collaboration is used to coordinate comprehensive and multidisciplinary assessments and supports. The consensus statement that recommended understanding the needs of formal and informal caregivers providing support to the individual was mentioned least often. There was some support for the face validity and applicability of the consensus statement with respect to real-world care planning and supporting adults with IDD who are frail.  Additional work is needed to examine if the use of these principles and recommendations leads to improved short and long-term outcomes. Read about additional findings from the study here: http://bit.ly/IDD-consensus-statement

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