Collaborative Research - Quality Outcomes
Collaborative Research - Quality Outcomes

Kelly Biggs and Rebecca Hansford – New Trainees

Kelly Biggs is a student in the MSc Epidemiology program at Queen’s University. She is working on a project entitled “Investigating the impact of intellectual and developmental disability on the stage of colorectal cancer at diagnosis among adults in Ontario.”  Stay tuned for results expected in September!

Rebecca Hansford is a student in the PhD Public Health Sciences (Epidemiology) program at Queen’s University. She is working on a project entitled “Comparing breast cancer staging, treatment, and survival among women with and without intellectual and or developmental disability in Ontario”.  Stay tuned for updates!

Adults with intellectual and developmental disabilities and interprofessional, team-based primary health care: a scoping review

Adults with intellectual and developmental disabilities (IDD) are a complex, vulnerable population known to experience health inequities. Interprofessional primary health care (PHC) teams are recommended to improve access to comprehensive and coordinated health care for these individuals. A new study performed a scoping review to map the available evidence for interprofessional PHC for adults with IDD. Despite the global search strategy, only 20 studies were reviewed, mainly from the United States and Canada. The findings represent only a few distinct interprofessional PHC team models of care and multiple contributions from a small pool of researchers. Roles for physicians, nurse practitioners, nurses, social workers, and mental health care providers were identified. Overall, there was no consistent reporting of outcomes across studies, and outcomes specifically related to many interprofessional services were not captured. Progress has been made to describe and evaluate care for adults with IDD within interprofessional PHC teams. However, more research is needed to demonstrate that quality, comprehensive, and coordinated interprofessional PHC is provided to adults with IDD. Read about additional findings from the study here:

Patterns of mortality among adults with intellectual and developmental disabilities in the Canadian province of Manitoba

There is growing evidence that people with IDD experience higher rates of mortality compared to the general population. A new study examined the patterns of mortality among a cohort of Manitoba adults with IDD compared to a comparison group matched on age, sex, health region of residence, and morbidity level. The study found that the crude annual mortality rates for Manitoba adults with IDD were 1.8 to 2.4 times higher than those for the matched comparison group and remained stable over time. Disparities in mortality rates for the IDD cohort relative to the matched comparison group decreased with increasing age. The leading causes of death among the IDD cohort were diseases of the circulatory system, cancer, and diseases of the respiratory system. Read about additional findings from the study here:

Inter-sectoral collaboration in the context of supporting adults with intellectual and developmental disabilities who are frail

Inter-sectoral collaboration is a critical element to consider when planning both the implementation and maintenance of team-based efforts. A framework for effective inter-sectoral collaboration involving the health care sector has identified six key conditions: necessity, opportunity, capacity, relationships, planned action, and sustained outcomes. A recent study by MAPS researchers investigated the collaboration between home care and disability services sectors in the context of supporting older adults with intellectual and developmental disabilities (IDD) who are frail. It examined how the collaboration aligned with this framework. Structured interviews with individuals with IDD, families, and professionals in both sectors, revealed that all six conditions were touched upon by providers from both sectors, but individuals with IDD and their families did not discuss sustained outcomes. The study also identified the need for resources and tools to promote the framework conditions when undertaking collaborative ventures. Read more about the details of the study and additional findings here:

IASSIDD Health SIRG Conference Cancellation

After much deliberation, the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Health Special Interest Research Group and Surrey Place have made the difficult decision to cancel our upcoming conference scheduled for June 16-17 in Toronto, out of concern for the well-being of our attendees. We will continue to monitor the situation and plan to reschedule the conference at a later date. We apologize for any inconvenience this has caused.

Annual Aging Report 2018/19

Through 2018 and 2019, MAPS researchers have been working on a variety of projects to understand effective intersectoral collaboration for the care of older adults with IDD who are frail and to disseminate relevant knowledge to key stakeholders including caregivers and adults with IDD. Our Aging Annual Report presents our products including research published in peer review journals, conference presentations and posters, infographics, and videos. You can access the Report here:

IASSIDD Health SIRG in Canada

Banner for the 2020 IASSIDD conference for the Health Special Interest Research Group. The title of the conference is "20/20 & Beyond" and will be held on June 16 and 17, 2020 in Toronto.

Save the date! The Annual IASSIDD Health Special Interest Research Group Conference is coming back to Canada ????

On June 16-17, 2020, join us for a rare opportunity to hear from international experts in intellectual and developmental disabilities.

Whether you’re a health care professional, developmental service provider, academic faculty, researcher or student in health care discipline, or a caregiver, this event is for you. We hope to see you all there!

For more information, visit

Webinar – Intersectoral collaboration

MAPS researchers will be presenting a webinar on November 19th 2019 about intersectoral collaboration and its role in supporting adults with IDD who are frail! The webinar will provide information on frailty among adults with IDD, principles and recommendations to guide action on frailty, and key elements of effective intersectoral collaboration. Attendees will also have the opportunity to provide valuable feedback during this interactive webinar! If you’re interested, register for the webinar at this link:

Beatrice Suero – MSc Defence

Congratulations to Beatrice Suero who successfully defended her MSc practicum project at Queen’s University in Kingston titled “Optimal time for primary care follow-up after hospitalization – older adults with intellectual and developmental disabilities (IDD)”. Beatrice’s research used health administrative data for over 6500 adults with IDD across Ontario held at ICES. A summary of her findings will be available shortly!

Eve Deck and Amy Choi – Further Education

Former MAPS trainees are beginning higher education this fall! Eve Deck has recently begun studies at the Michael G DeGroote School of Medicine at McMaster University. Amy Choi is also pursuing post-graduate education at the University of Toronto in their Doctor of Pharmacy program. MAPS wishes the best to both in their future endeavours!

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