Collaborative Research - Quality Outcomes
Collaborative Research - Quality Outcomes

Emma Hildebrandt- New Trainee

Emma Hildebrandt, an undergraduate student in the Life Sciences Specialization program at Queen’s, has joined our team for the summer and will be working on a cancer-related project for her 4th year honours thesis starting in the fall.

Rebecca Hansford- OADD RSIG

Rebecca Hansford will be presenting at the upcoming 2021 OADD RSIG Day. Her research examined COVID-19 tests results among a high-risk sample of adults with intellectual and developmental disability in Ontario.

From premise to practice: Applicability of a consensus statement for supporting adults with IDD who are frail

The study of frailty in adults with intellectual and developmental disabilities (IDD) is an emerging area of research. A new study developed a consensus statement on how to support adults with IDD as they become frail. Twenty-three care plans for adults with IDD who were identified as frail were considered. Goals, actions, and outcomes were coded based on the consensus statement’s principles and recommendations. While care planning for frail individuals, staff appeared to focus on the consensus statement recommendation that improvement and maintenance of the individual’s status are viable goals. Staff also appeared to focus on the consensus statement recommendation that intersectoral collaboration is used to coordinate comprehensive and multidisciplinary assessments and supports. The consensus statement that recommended understanding the needs of formal and informal caregivers providing support to the individual was mentioned least often. There was some support for the face validity and applicability of the consensus statement with respect to real-world care planning and supporting adults with IDD who are frail.  Additional work is needed to examine if the use of these principles and recommendations leads to improved short and long-term outcomes. Read about additional findings from the study here:

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