Collaborative Research - Quality Outcomes
Collaborative Research - Quality Outcomes

IASSIDD Health SIRG in Canada

Banner for the 2020 IASSIDD conference for the Health Special Interest Research Group. The title of the conference is "20/20 & Beyond" and will be held on June 16 and 17, 2020 in Toronto.

Save the date! The Annual IASSIDD Health Special Interest Research Group Conference is coming back to Canada ????

On June 16-17, 2020, join us for a rare opportunity to hear from international experts in intellectual and developmental disabilities.

Whether you’re a health care professional, developmental service provider, academic faculty, researcher or student in health care discipline, or a caregiver, this event is for you. We hope to see you all there!

For more information, visit

Webinar – Intersectoral collaboration

MAPS researchers will be presenting a webinar on November 19th 2019 about intersectoral collaboration and its role in supporting adults with IDD who are frail! The webinar will provide information on frailty among adults with IDD, principles and recommendations to guide action on frailty, and key elements of effective intersectoral collaboration. Attendees will also have the opportunity to provide valuable feedback during this interactive webinar! If you’re interested, register for the webinar at this link:

Beatrice Suero – MSc Defence

Congratulations to Beatrice Suero who successfully defended her MSc practicum project at Queen’s University in Kingston titled “Optimal time for primary care follow-up after hospitalization – older adults with intellectual and developmental disabilities (IDD)”. Beatrice’s research used health administrative data for over 6500 adults with IDD across Ontario held at ICES. A summary of her findings will be available shortly!

Eve Deck and Amy Choi – Further Education

Former MAPS trainees are beginning higher education this fall! Eve Deck has recently begun studies at the Michael G DeGroote School of Medicine at McMaster University. Amy Choi is also pursuing post-graduate education at the University of Toronto in their Doctor of Pharmacy program. MAPS wishes the best to both in their future endeavours!

IASSIDD 2019 World Congress Posters

MAPS members and trainees presented for delegates from across the world at the IASSIDD 2019 World Congress in Glasgow, UK in August 2019. Hélène Ouellette-Kuntz presented surprising results of a project examining readmission rates of older adults with IDD and its relationship with primary care follow-up after a hospitalization. Tori Barabash presented the examination of care plans for older adults with IDD within community-based organizations in Ontario in the context of the international consensus statement on frailty in IDD. See their posters below.

AGE-WELL Catalyst and New Frontiers Grant

Congratulations to Virginie Cobigo (Principal investigator) and Rosemary Lysaght (Co-researcher) on receiving the AGE-WELL Catalyst grant and New Frontiers grant. Through the AGE-WELL grant, they will be developing a social enterprise that will employ and train persons with cognitive disabilities to provide a suite of services, in French and English, to technology developers (academics and private industry, including start-ups), accessibility professionals (i.e., offering accessibility consulting and assessment), caregivers, as well as policymakers. Through the New Frontiers grant, they will conduct a small-scale implementation of an inclusive approach to R&D with their first confirmed partner, the IT Accessibility office at Employment and Social Development Canada (Government of Canada).

Beatrice Suero – New Trainee

Beatrice Suero is a student in the MSc Biostatistics program at Queen’s University. She is working on an aging-related project entitled “Optimal time for primary care follow-up after hospitalization – older adults with intellectual and developmental disabilities.”  Stay tuned for results expected in September!

Tori Barabash – Travel Awards

Congratulations to Tori Barabash who received a Canadian Institutes for Health Research (CIHR) – Institute Community Support Travel Award and an IASSIDD Travel Award to attend the 2019 World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities held in Glasgow this August. She will be presenting her findings on how existing care plans for individuals with IDD who are frail or pre-frail follow the frailty consensus statement recommendations and which areas should be focuses for planners. 

New study examines cancer among adults with IDD

Hélène Ouellette-Kuntz is collaborating with researchers from Manitoba and Ontario to study cancer burden and outcomes for Canadians living with IDD. The 4-year project led by Dr. Alyson Mahar at the University of Manitoba and funded by CIHR will rely on health administrative data held in the two provinces.  The goal is to determine whether or not Canadians living with IDD are more likely than Canadians who do not have IDD to be diagnosed with cancer; to be diagnosed with incurable cancer; to not receive the right cancer treatment; and to die of their cancer. Read more about the funding at

Whitney Taylor – PhD Defence

Congratulations to Whitney Taylor who successfully defended her PhD thesis in Psychology at the University of Ottawa titled “A Family Systems Perspective on Supporting Self-Determination in Adults with Intellectual and Developmental Disabilities During Transitions”. Whitney’s research relied on surveys completed by parents as well as interviews with adults with IDD, their parents and service providers. A summary of her findings will be available shortly.

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